Links

The Magic Foundation - A great place for info on more than just
one rare disorder. The MAS coordinator, Annie, is just wonderful.

The Paget Foundation - A good source of information.

Craniofacial and Skeletal Diseases Branch, National Institute of Health
Click on staff and look up Dr. Michael Collins. He's an endocrinologist whose
specialty is MAS/PFD. He speaks at conferences by the Magic Foundation, and
he's the ultimate knowledge when it comes to this syndrome. They also do research
studies that you may be eligible for, but you will have to travel there on your own.

Fibrous Dysplasia Foundation - A great group, and lots of good info. When you
register, you will be able to meet lots of people via email that have MAS, PFD or both.
It sure helps to network with people, and to realize that even though the conditions
are unique, you're not alone.

~What is MAS? ~ Cafe-au-Lait spots ~ Endocrine Abnormalities ~
~ Fibrous Dysplasia ~ Hannah's Story ~ Hannah's Pictures ~
~ Our Doctors ~ M.D. Anderson Cancer Center ~
~ The Ronald McDonald House ~ My Thoughts ~
~ Links ~ Email Addresses ~ Main Page ~